Toronto parents Terry and Georgia Pirovolakis have developed a gene therapy treatment to combat their son Michael’s rare neurological disorder, SPG50. This condition, which affects fewer than 100 people worldwide, has no existing cure. Faced with this grim reality, Terry began researching potential treatments, reaching out to experts in the U.S., UK, and Spain.
After extensive research and funding, the Pirovolakis family developed a treatment that successfully halted the disease’s progression in both mice and human cells. This remarkable achievement has given hope not only to their son but also to other families grappling with this rare disorder.
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Now, Terry and Georgia aim to share their breakthrough with the global community. They hope this new gene therapy can provide a lifeline to other children affected by SPG50. Their journey underscores the power of determination and the lengths parents will go to save their children, potentially changing the future of rare disease treatment.
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